Miracle for MaKenna
PRINCETON — In many ways, MaKenna DeGrush of Princeton sounds like many other 5-year-old girls.
Her favorite television show is “Austin and Ally” on the Disney channel, and her favorite book is “The Little Mermaid.” She is a huge pasta lover and loves anything by country singer Taylor Swift. In the evenings, she likes to go for walks and to go get ice cream. MaKenna is a student in the Bright Beginnings program at Douglas School, where her favorite thing is to play with her friends.
But MaKenna has some special challenges in life because she was born with spinal muscular atrophy (SMA), a motor neuron disease that causes muscle weakness and atrophy (wasting). Approximately 1 in 6,000 babies born are affected by SMA, which is linked to a genetic mutation in the SMN1 gene.
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