(BPT) - Having a reliable support system is important to all of us. It is particularly important to the families of those living with Lennox-Gastaut syndrome (LGS), a severe and rare form of epilepsy that affects an estimated one in 50,000 to one in 100,000 children and up to 4 percent of children with epilepsy. Many families may be struggling with the demands of caring for a loved one with this condition – a task that may require around-the-clock attention and support.

LGS is characterized by three key characteristics:

* a clinical triad of a slow spike-and-wave pattern on an EEG,